Today the Indian Transplant recipient community has no voice or locus standi.
Transplant Recipient’s Indian Organisation – Meant to Provide Hope – A support group for transplant recipients, transplant candidates and those who are caring for them.
YOU ARE NOT ALONE
Whether you're on the waiting list or recovering from transplant surgery or a care giver, the support you need is always just a call, click or short drive away.
WHY A SUPPORT GROUP
- Share your challenges
- Speak your fears out loud
- Exchange ideas and information
- Celebrate every victory – big or small
- Connect with others who know exactly what you’re going through or how you’re feeling
The process of having an evaluation for an organ transplant can be stressful, no matter what the outcome. The outcomes can range from being eligible for a transplant, to receiving a new organ, and beyond.
This journey can change a person's life, and the lives of their family members or caregivers. It's crucial, for all involved in the transplant process, to have a strong support system.
Transplant support groups can help ease the stress of both transplant candidates and those who are caring for them.
Support groups are a great way for people on this journey to:
BE HEARD: STRENGTH IN UNITY
- Get information from others who are going down the same medical path.
- Validate their fears.
- Hear others' transplant stories and experiences.
Today the Indian Transplant community has no voice or locus standii. Together, we can change that.
Through collective activism we can take up issues relating to organ donation and transplantation, so they can be taken seriously by the society and the government.
We can work together at saving many lives by creating awareness about Organ Donation.
WAYS TRANSPLANT SUPPORT GROUPS CAN HELP
Are you looking for pre-transplant support, post-transplant support, or simply support for caregivers? You may have a lot of questions. Reach out to others to know answers to questions such as these:
CAREGIVERS NEED SUPPORT TOO
- Coping with an organ transplant — what have others' experiences been like?
- Being on the organ transplant waiting list — how long have others waited? What's it like when you get "the call"?
- Readjusting after the transplant — how long until I will feel better?
- Emotional support after transplant — will I feel guilty?
- Caring for a transplant patient — will I be able to do it by myself?
The focus during the organ transplant process is often on the patient. This person may be very sick, worried about their finances and health, and anxious about whether they will receive an organ.
Caregivers feel these same emotions, just from a different perspective.
TRIOMPH will offer opportunities for caregivers to get together and reach out to each other to seek information and get support.
KNOWLEDGE IS POWER
- TRIOMPH group meetings will allow patients and their loved ones to participate by sharing their experiences and in doing so receive emotional support and feedback from others who can relate to the impact of kidney disease. Group participants will be diverse and in various stages of the transplant process.
- An invited panel of experts like doctors, dieticians, specialists, etc., will share knowledge on specific transplant related matters.
- Various educational materials such as Transplant guides, etc., will be made available.
Together, group facilitators, guest speakers and participants will explore the physical and emotional concerns that accompany transplants. Informational discussions are designed to touch upon the individual needs of each transplant patient and his or her family and friends. Common topics discussed at meetings would include:
WHO CAN BECOME MEMBERS
- The transplant process
- Lifestyle changes caused by transplant
- Financial and insurance concerns associated with transplant
- Taking immunosuppression medicines – Costs and Side effects
- Living with a transplanted organ – diet, hygiene, lifestyle
- Fear of organ rejection
- Challenges in caregiving – Pre & Post Transplant
- Heart, Liver and Kidney Transplant Recipients
- Transplant Caregivers
- Patients with end-stage organ diseases (not eligible for transplants) and their caregivers
As TRIOMPH becomes a strong group, it will strive to take up post-transplant issues with concerned authorities, on behalf of its members such as
- Medicines at subsidized rates
- Laboratory Tests at Subsidized rates
- Subsidized Annual medical screening for specific tests
- Medical Insurance
- Quality of Life (QoL) initiatives
- And more