PROBLEMS OF NEWLY DIAGNOSED KIDNEY FAILURE PATIENTS

PROBLEMS OF KIDNEY TRANSPLANT PATIENTS

PROBLEMS OF KIDNEY DONORS

PROBLEMS OF KIDNEY FAILURE RELATIVES

 PROBLEM OF “NOT BEING HEARD”

MEETINGS

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PROBLEM OF “NOT BEING HEARD” Kidney failure patients need to take a lesson from those with HIV-AIDS and become activists if they wish that issues related to organ donation and transplantation be taken seriously by both the government and the public in India. Today the Indian transplant programme has no voice or locus standi in our country. A concerted effort is required. The passage of Transplantation of Human Organ Act by the Indian Government was meant to help the organ failure patients. In western countries annually over 50,000 transplants are done and 95% of the organs come from patients who are “Brain dead” or Cadavers. Live related kidney donation only forms a small part of the programme. In India almost three years have elapsed and we have barely managed to do just over 100 cadaver organ transplants. This also is only due to individual pursuits by a few dedicated doctors. The government has done nothing to spread the awareness of solid organ donation (like kidneys, heart, liver and pancreas). As a cohesive support group your voice of togetherness to alleviate the suffering of kidney failure patient is more likely to be heard both by the society and the Indian Government. MEETINGS The support group will meet every month. During such meetings an interaction between members will be encouraged. Patients will be allowed to share their experiences and voice their insecurities and their problems. A small panel of invited people like doctors, psychiatrists, nurses and dietitians will try and help out by providing possible solutions.

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MOHAN Foundation is committed to the cause of alleviating the suffering of Kidney Failure patients and helping to promote the cause of organ donation in India.